Monday, 15 September 2014

York and Cardiff academics launch new resource for family members of people in vegetative or minimally conscious states






Media Information: Saskia Angenent +44 (0)1904 323918

York and Cardiff academics launch new resource for family members of people in vegetative or minimally conscious states

A unique online resource for family members and others involved in the care of people with severe forms of brain injury is to be launched this week.

Featuring over 250 in-depth interview film clips, the resource explores family experiences of having a relative in a vegetative or minimally conscious state. It explains key terms, reflects on the challenging choices families confront and outlines the clinical and legal context of decision-making about medical treatment.

Compiled by Professor Celia Kitzinger and Professor Jenny Kitzinger, Co-Directors of the York-Cardiff Chronic Disorders of Consciousness Research Centre, the research has been made into a new section on the award-winning charity website healthtalk.org, due to launch in London on 17 September.

Funded by the Economic and Social Research Council (ESRC) and the Health Experiences Research Group (HERG), Department of Primary Care Health Sciences, University of Oxford, the resource presents findings from nearly four years’ research, featuring interviews with 65 different family members as well as talks from leading medical practitioners in the field of serious brain injury.

Admission


An exhibition featuring artwork, poems and postcards from family members will also be on display during a drinks reception. Entry is free but strictly by ticket only. For further details and to register for the event, visit: https://www.eventbrite.co.uk/e/family-experiences-of-vegetative-and-minimally-conscious-states-tickets-12508771071.

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